Pro tip from a veteran 😸 a lot of chronically ill people have to self isolate every year, sometimes for months, myself included. Especially in flu season or during a flare up in symptoms. So, my pro tip is to find something specific to concentrate on. For me it has been art and mahayana buddhist yoga. I am not exaggerating when I say it has saved me and given me so much out of life. Also, rest a lot. Don’t feel like you have to do something all the time. No one really cares what you do with your time and energy, so make yourself comfortable in the uncertainty. 🙏🏼🍀🤓
If someone asked you ‘why’ you love your SO, partner or a crush, you could probably list a bunch if their nice qualities and things about them that you appreciate. But that is not WHY you love someone, because you can list the same qualities in a bunch of other people you don’t love. In fact, someone you hate can be extremely talented or compassionate. Your feelings towards or for someone does not change them.
These qualities and traits is probably something you noticed *after* getting feelings of love and affection. Love is funny and amazing like that; it will open your eyes and heart, and is not something you can ever control with your will or thoughts. It will also make one go the extra mile.
As far as I can tell, love just happens based on factors I do not understand entirely. Also, I think love and compassion is our basic nature. Humans are complicated, relationships are usually difficult, not always compatible, but often worth it.
I realise being polyamorous and queer/bi is not the norm, but it is part of what makes me Monica, and I feel very fortunate to live in a time and decade with less judgement, but it’s still here. At the beginning of this year, a friend of mine told me that she had used me as a example while trying to come out to her parents. It flattered me in a sense that she used me, but it was quickly gone again after she told me her dad’s response, which was basically that I was not the type of person he ever wanted her to hang out with again for being polyam and queer. My “practice was sick”. In the end, she did not come out. Made me extremely sad, and I do not feel welcome in their home anymore.
Love is love. Not in a naïve way where everything goes, but in a very basic human way, and there are as many ways of expressing it as there are people.
So, I wanted to just write a bit about my chronic conditions/disabilities, just in the hopes of connecting with others in a similar situation.
I used to post quite a lot about it, but realised that maybe it came across as complaining. So I stopped. I never wanted it to come out as complaining or like ‘hey, my life and health is shit’, but just as me telling people in my life and others who might be interested what was happening, why I couldn’t work or study, why I am on disability benefit. And also as a way for me to raise awareness about these things, because it seems needed. Both in terms of judgement and in terms of getting adequate medical treatment.
Social media is such a big and important platform for chronically ill people. It connects us and we can use it as a way of still being in society, since we can’t always physically join things.
I have six conditions and it would be nice to connect with others in the same situation. So please leave a comment if you would like to share what everyday life is like for you!❤
(My conditions: myalgic encephalomyelitis, hypermobility syndrome, IBS, interstitial cystitis, migraine and I am on the spectrum. Being on the spectrum is absolutely not an illness, but it does affect how I function). 🤓