So, I wanted to just write a bit about my chronic conditions/disabilities, just in the hopes of connecting with others in a similar situation.
I used to post quite a lot about it, but realised that maybe it came across as complaining. So I stopped. I never wanted it to come out as complaining or like ‘hey, my life and health is shit’, but just as me telling people in my life and others who might be interested what was happening, why I couldn’t work or study, why I am on disability benefit. And also as a way for me to raise awareness about these things, because it seems needed. Both in terms of judgement and in terms of getting adequate medical treatment.
Social media is such a big and important platform for chronically ill people. It connects us and we can use it as a way of still being in society, since we can’t always physically join things.
I have six conditions and it would be nice to connect with others in the same situation. So please leave a comment if you would like to share what everyday life is like for you!❤
(My conditions: myalgic encephalomyelitis, hypermobility syndrome, IBS, interstitial cystitis, migraine and I am on the spectrum. Being on the spectrum is absolutely not an illness, but it does affect how I function). 🤓